Welcome to Heart Of A Giant!

Hi, I am Somaneh Bouba, I come from Mali and Senegal. I was a high-flying engineer and entrepreneur working on my African Dream when I found myself having to stay in the USA with my wife and sons, to receive life-saving heart treatment.

I survived congestive heart failure caused by a congenital heart defect, lived with the risk of sudden cardiac arrest without being aware for a long time. Despite, years of therapies, multiple events, milestones, locations… In 2017, I underwent open-heart surgery to implant an LVAD pump inside my heart, while I wait for a heart transplant.

Here, I share an unfiltered account of my lived experience with my illness and the support system that is helping me to stay alive, be successful, and aspire to self-actualization, and how he still has faith in life, hope for tomorrow, and dreams for the future.

I blog as a patient because I strongly believe it is critical that the patient’s point of view is made more relevant and informs the improvement of therapies and healthcare systems.

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With my son at the 2019 Boston Heart Walk (Photo By Jim Mahoney/Boston Herald)
The Boston Heart Walk Digital Experience is just a few days away, and I hope you are all as excited as I am to come together as a team for the week-long events and activities.

Again, thank you so much for your support. We did it! We raised our target team fundraising goal, and we could not be more excited.

With all that we are living in these challenging times, your support means much more than usual. You are touching and saving lives. [...]
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..., So, here I am, …Just a few hours before midnight.
Before my 34th birthday. [...]
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Thank you, thank you! I genuinely appreciate your support, especially in the challenging times we are collectively facing. Millions of moms, dads, brothers, and sisters will benefit from your support.

The Heart Walk Digital Experience to defeat heart disease and stroke will take place the whole week of October 19th to October 25th. We are excited to celebrate in just a few days! Below are some details about what we have planned for the week. [...]
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Friends, we have less than 4 weeks to go!
VIDEO: The Heart Walk is around the corner. If you have not already signed up to support, please do so now. And do not forget to grab your fans tees :).

In this short video, I share a brief reminder of the event and why I am rooting for this cause. [...]
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A few notes about me and my meditation: meditation means a lot. I found practicing meditation very helpful. So, here, I would like to tell you a little bit about how it has been helping me and the role it has been playing in my wellbeing, my health, body, mind, and spirit.



Thank you for being here. I hope you enjoy your reading. I look forward to your comments and note sharing.



Living with a chronic illness that has no cure, the hard work is never-ending. You have got to be working hard all the time. [...]
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