Welcome to Heart Of A Giant!

Hi, I am Somaneh Bouba, I come from Mali and Senegal. I was a high-flying engineer and entrepreneur working on my African Dream when I found myself having to stay in the USA with my wife and sons, to receive life-saving heart treatment.

I survived congestive heart failure caused by a congenital heart defect, lived with the risk of sudden cardiac arrest without being aware for a long time. Despite, years of therapies, multiple events, milestones, locations… In 2017, I underwent open-heart surgery to implant an LVAD pump inside my heart, while I wait for a heart transplant.

Here, I share an unfiltered account of my lived experience with my illness and the support system that is helping me to stay alive, be successful, and aspire to self-actualization, and how he still has faith in life, hope for tomorrow, and dreams for the future.

I blog as a patient because I strongly believe it is critical that the patient’s point of view is made more relevant and informs the improvement of therapies and healthcare systems.

https://youtu.be/-31p3hDIryE
Friends, we have less than 4 weeks to go!
Team Heart of GIANT <> AHA Boston 2020 HEART WALK

VIDEO: The Heart Walk is around the corner. If you have not already signed up to support, please do so now. And don't forget to grab your fans tees :). [...]
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A few notes about me and my meditation. Meditation means a lot. I found practicing meditation very helpful. So, here, I would like to tell you a little bit about how it has been helping me, and the role it's been playing in my wellbeing, my health, body, mind, and spirit. Thank you for being here. I hope you enjoy your reading. I look forward to your comments and note sharing.



Living with a chronic illness that has no cure, the hard work is never-ending. You have got to be working hard, all the time. [...]
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Hello, I hope this finds you happy healthy and your family as well.





It was with a heavy heart that I learned that last week the town my Friend and Coach John1 grew up in was completely burned down. His parents' house was in that fire and they lost everything. Fortunately, he and his brothers did not lose their parents. This specific fire was titled the “Bear Fire”.



I would like to share this Gofundme link (https://gf.me/u/yyi7qa) his little brother set up for their Parents. [...]
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Supporting the Heart Walk means a lot to me. Heart Health is obviously a cause that is dear to my heart (pun intended). I get particularly excited about the Heart Walk because it was the one joyful event at which I could bring together everyone - from family to friends, to my care team and fellow patients and survivors.



All that to say, thank you for already joining and giving to the AHA through Team Heart Of A Giant! I really appreciate it. Thank you for supporting the Boston (Digital) Heart Walk. [...]
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My submissions for Health Union's Heart-Failure.Net that have been published to date:



12. Panic, Revisited - Part 211. Panic, Revisited - Part 110. Solutions for Daily Living9. Heart of a Giant Support System, Part 3: My Medical Care Team8. Ask the Advocates: Mental Health (Social Support)7. ​Heart of a Giant Support System, Part 2: In Sickness and in Health6. Heart of a Giant Support System, Part 1: Even a Giant Needs Shoulders to Stand On5. A New Way of Moving Through Life, Part 2 4. A New Way of Moving Through Life, Part 13. Cardiac Rehabilitation2. [...]
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Hi Everyone: Yes, it is that time of the year. Just a little more than 60 days to go for the 2020 Boston Heart Walk. This year would be our 4th participation in a row supporting the work of the American Heart Association to improve the health of Greater Boston.



We are excited to officially kick off the drive for this year's Heart Walk, which will be the biggest ever. The event is moving online. Everyone can join from anywhere and be part of this passionate movement. [...]
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