Welcome to the HofaG Blog!

Hi, I am Somaneh Bouba. I come from Mali and Senegal. I was a high-flying engineer and social entrepreneur working on my African Dream when I found myself having to stay in the USA with my wife and sons to receive life-saving heart treatment.

I am living with advanced heart disease caused by a congenital heart defect. I lived with the risk of sudden cardiac arrest without being aware for a long time. Despite years of therapies, multiple events, milestones, locations… In 2017, I underwent open-heart surgery to implant an LVAD pump inside my heart. The LVAD pump is helping my heart function while I wait for a heart transplant.

Here, I share an unfiltered account of my lived experience with my illness and the support system that helps me live a healthy life quality, be successful, and even aspire to self-actualization. I also write on how I still have faith in life, hope for tomorrow, and dreams for the future. 

I blog as a patient because I firmly believe it is critical that the patient’s point of view is made more relevant and informs the improvement of therapies and healthcare systems.

Tina Marie developed heart disease induced by pregnancy, a condition known as PPCM (Peripartum Cardiomyopathy) when she was 28. As a survivor of PPCM, she continues to overcome stage IV advanced heart failure, with the assistance of an LVAD, for the past nine years.
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Please join us in our next Live Zoom Conversation with Aiste Staraite @aistestaraite. Aiste hails from the Northern European country of Lithuania. She is a proud #HeartFailure and #brainstroke survivor, currently living with the LVAD heart pump and waiting for a heart transplant.
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This week, we're talking with Melanie Field, aka Mel, all the way from London, UK. Mel was diagnosed with dilated cardiomyopathy at 28 while she was 4 months pregnant with her first daughter. Now, in her 40s, she has also lived through a cancer scare and hormonal troubles that have further weakened her heart. Despite so many challenges, Mel has made many happy memories while living with her LVAD. She continues to thrive while enjoying her family and friends. Join our Zoom meeting for more.
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In this episode, we will talk with Jazmine and Tawana (respectively daughter and sister-in-law), who cared with a big loving heart for our dearly missed Evelyn Charrisse McRae.
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Time to show off your Heart of a Giant? We appreciate your interest in supporting Heart of a Giant. Through the -bZero9 online store, we are bringing our supporters authentic merchandise that can both mark and commemorate our shared commitment to heart health and resilience in the face of adversity. [...]
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"If you don't celebrate, then what's the point of living?"
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