Welcome to the HofaG Blog!

Hi, I am Somaneh Bouba, I come from Mali and Senegal. I was a high-flying engineer and entrepreneur working on my African Dream when I found myself having to stay in the USA with my wife and sons, to receive life-saving heart treatment.

I survived congestive heart failure caused by a congenital heart defect, lived with the risk of sudden cardiac arrest without being aware for a long time. Despite, years of therapies, multiple events, milestones, locations… In 2017, I underwent open-heart surgery to implant an LVAD pump inside my heart, while I wait for a heart transplant.

Here, I share an unfiltered account of my lived experience with my illness and the support system that is helping me to stay alive, be successful, and aspire to self-actualization, and how he still has faith in life, hope for tomorrow, and dreams for the future.

I blog as a patient because I strongly believe it is critical that the patient’s point of view is made more relevant and informs the improvement of therapies and healthcare systems.

4
Share on facebook
Share on twitter
Share on linkedin
Share on email
Undeniably, times are tense. On days like these, it is best to keep things simple. One way I am managing is meditating in the mornings. Through this habit, I make space, and I open myself up to receive more healing energy. [...]
6
Share on facebook
Share on twitter
Share on linkedin
Share on email
Caution is usually recommended leading up to elections but watching unprecedented damage and incompetence; we must publicly share our desire for a U.S. leadership change. Never in the history of any group of people, organizations, or countries has such a pressing need for a leadership change.My conscience pushed me to affirm my political stance publicly. This election is about defending the U.S.'s soul and defining who the country wants to be in the future. [...]
8
Share on facebook
Share on twitter
Share on linkedin
Share on email
It is official, Team Heart Of A Giant is made up of All-Star folks with real heart! For this year’s Boston Heart Walk, we came out and walked! From Boston to Bamako, Dakar, to Paris, Singapore, Reims, Atlanta, Plymouth, Warsaw, Niaguiss, Ziguinchor, Casamance, Pretoria, Johannesburg, Pretoria, Cape Town, Beyrouth, Milton, and more….[...]
10
Share on facebook
Share on twitter
Share on linkedin
Share on email
6
Share on facebook
Share on twitter
Share on linkedin
Share on email
The Boston Heart Walk Digital Experience is just a few days away, and I hope you are all as excited as I am to come together as a team for the week-long events and activities.Again, thank you so much for your support. We did it! We raised our target team fundraising goal, and we could not be more excited. [...]
7
Share on facebook
Share on twitter
Share on linkedin
Share on email
en_USEnglish

ARE YOU IN?

Sign up for the weekly newsletter and get 10% OFF your first order of original Heart of a Giant Merch!

We use cookies to improve our user experience. You can read more about our Cookie Policy in our Privacy Policy. Click here to read more.