Welcome to the HofaG Blog!

Hi, I am Somaneh Bouba. I come from Mali and Senegal. I was a high-flying engineer and social entrepreneur working on my African Dream when I found myself having to stay in the USA with my wife and sons to receive life-saving heart treatment.

I am living with an advanced heart disease caused by a congenital heart defect. I lived with the risk of sudden cardiac arrest without being aware for a long time. Despite years of therapies, multiple events, milestones, locations… In 2017, I underwent open-heart surgery to implant an LVAD pump inside my heart. The LVAD pump is helping my heart function while I wait for a heart transplant.

Here, I share an unfiltered account of my lived experience with my illness and the support system that helps me live a healthy life quality, be successful, and even aspire to self-actualization. I also write on how I still have faith in life, hope for tomorrow, and dreams for the future.

I blog as a patient because I firmly believe it is critical that the patient’s point of view is made more relevant and informs the improvement of therapies and healthcare systems.

Come hear the award-winning Allyson Perron Drag share the journey behind the advocacy programs she leads to influence local, state, and national public issues related to the Heart Health.
3
Share on facebook
Share on twitter
Share on linkedin
Share on email
In our next episode of Living with Heart Disease, we will be talking to fellow LVAD-enabled man Shawn Connors. Shawn is a widow/single father, computer nerd, gamer, Christian, sneakerhead, and foodie.
10
Share on facebook
Share on twitter
Share on linkedin
Share on email
Super Truck vs. Super Wings - What to watch? Mediating between the twins
7
Share on facebook
Share on twitter
Share on linkedin
Share on email
I have decided to share a few of my notes from last year, 2020. It feels like we are under a stress test; our resilience tested to its limit. At the same time, we need the habits and coping mechanisms we have developed over the years to navigate through the pandemic, survive and come out hopeful about the future.
6
Share on facebook
Share on twitter
Share on linkedin
Share on email
Tina Marie developed heart disease induced by pregnancy, a condition known as PPCM (Peripartum Cardiomyopathy) when she was 28. As a survivor of PPCM, she continues to overcome stage IV advanced heart failure, with the assistance of an LVAD, for the past nine years.
15
Share on facebook
Share on twitter
Share on linkedin
Share on email
Please join us in our next Live Zoom Conversation with Aiste Staraite @aistestaraite. Aiste hails from the Northern European country of Lithuania. She is a proud #HeartFailure and #brainstroke survivor, currently living with the LVAD heart pump and waiting for a heart transplant.
15
Share on facebook
Share on twitter
Share on linkedin
Share on email
en_US English

ARE YOU IN?

Sign up for the weekly newsletter and get 10% OFF your first order of original Heart of a Giant Merch!

We use cookies to improve our user experience. You can read more about our Cookie Policy in our Privacy Policy. Click here to read more.