Here are details for the day and the week of the heart walk. We look forward to walking with you, and the rest of Team Heart of a Giant.
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My submissions for Health Union's Heart-Failure.Net that have been published to date:
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It's time to get ready! The 2021 Heart Walk is upon us, and this will be our 5th participation in the American Heart Association's event. Please join us in making this year a good one! I look forward to supporting the AHA and rocking our fan gear on the d-day.
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It's time to get ready! The 2021 Heart Walk is upon us, and this will be our 5th participation in the American Heart Association's event. Please join us in making this year a good one! I look forward to supporting the AHA and rocking our fan gear on the d-day.
184
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Welcome to the Blog!

Hi, I am Somaneh Bouba. I come from Mali and Senegal. I was a high-flying engineer and social entrepreneur working on my African Dream when I found myself having to stay in the USA with my wife and sons to receive life-saving heart treatment.

I am living with an advanced heart disease caused by a congenital heart defect. I lived with the risk of sudden cardiac arrest without being aware for a long time. Despite years of therapies, multiple events, milestones, locations… In 2017, I underwent open-heart surgery to implant an LVAD pump inside my heart. The LVAD pump is helping my heart function while I wait for a heart transplant.

Here, I share an unfiltered account of my lived experience with my illness and the support system that helps me live a healthy life quality, be successful, and even aspire to self-actualization. I also write on how I still have faith in life, hope for tomorrow, and dreams for the future.

I blog as a patient because I firmly believe it is critical that the patient’s point of view is made more relevant and informs the improvement of therapies and healthcare systems.

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